It is almost 5:00 am and I have been up for 2 and a half hours. Spent about an hour of that laying in bed wondering what to do. I didn't want to get up. I want to roll over and fall back asleep and sleep until 10:00 am. Alas, no such luck. I guess that's the price I have to pay for not having any episodes since the ablation: sleep deprivation. Its really just a side effect of the medications that try and suppress the angry sarcoid. Thats my biggest complaint. The lack of sleep. I need my sleep. Just 7-8 hours a night is OK by me. Currently I get about 5 and thats just not enough.
So...no episodes, such as ATP (Anti Tachycardia Pacing) or VT and my defibrillator has not fired as well. All good news. At least I haven't had any since I last went to the good doctors at CU a couple of weeks ago, mid December. I don't think I have had any since then either.
I returned to work at the beginning of December and that was good. Getting back into a routine and kind of feeling normal again. The worst part about all of it is the side effects from the 2 medicines that are suppressing the angry sarcoid: prednisone and cellcept. The side effects for both are Insomnia and then there's the whole insatiable apatite and redistribution of fat to the face and belly and back just from the prednisone. So needless to say it hasn't been easy losing any weight over the holidays.
So for right now I have been just following doctors orders: take the medicines and come back and see us. Now I just have to come to the realization that the ablation has bought me some time. It is no long term solution. The sarcoid is still there and there is no cure. The best that can be done is to suppress the immune system with the aforementioned medications and hope that the sarcoid doesn't get angry again (HA! whats the likelihood of that?). I just hope that when it does get angry that we see some roadsigns for when it is just starting to get a little upset and not have to wait for the ICD to to let me know.
Until then I am just following doctors orders: take the medications, be healthy and live life.
Tuesday, December 30, 2008
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